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The Cystinosis Research Foundation is the largest non-profit fund provider of cystinosis research in the world, funding more than 51 cystinosis studies and fellowships in six countries. 100% of your donations go directly to fund cystinosis research. Help us fund research to find a cure for cystinosis.
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The Cysintosis Research Foundation is providing the following information as a service to the community. This information is intended for general education purposes only, and should not be construed as advising on diagnosis or treatment of this or any other medical condition.
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Save the Date for Natalie’s Wish Fundraiser– April 30th at the Balboa Bay Club, Newport Beach, CA
John Ondrasik

Join us Friday, April 30th for our annual Natalie’s Wish fundraising event at the beautiful Balboa Bay Club in Newport Beach, CA. Guests will enjoy a live performance by John Ondrasik of Five for Fighting, and a short film on cystinosis research progress. Then the bidding begins on fabulous items in our live auction, including fantastic travel and entertainment packages, jewelry and wine collections. This event is the highlight of our year, with many of our supporters and cystinosis families joining together for a night of hope and celebration in our quest to cure cystinosis. More information and invitations to come.

Join our mailing list by emailing info@cystinosisresearch.org with your contact information.