Other Resources

The Cysintosis Research Foundation is providing the following information as a service to the community. This information is intended for general education purposes only, and should not be construed as advising on diagnosis or treatment of this or any other medical condition.

Medical Resources

Gene Tests
www.geneclinics.org

Clinical Genetic Testing - Test must be ordered by a physician
http://www.cincinnatichildrens.org/service/s/star/genetic-testing/ 

National Organization for Rare Disorders (NORD) 
www.rarediseases.org

University of California, Irvine - Mitomed Diagnostic Laboratory
http://mitomed.bio.uci.edu/ - Offers Cystinosis Gene Testing

University of California, San Diego
http://biochemgen.ucsd.edu/cystinosis

Raptor Pharmaceuticals Corp.
www.raptorpharma.com

Other Resources

Genetic Alliance  
www.geneticalliance.org

U.S. Department of Health & Human Services – National Health Information Center  
www.Healthfinder.gov

Hide and Seek Foundation for Lysosomal Disease Research  
www.hideandseek.org

Cystinosis Foundation (CF) 
www.cystinosisfoundation.org

Cystinosis Research Network (CRN) 
www.cystinosis.org

Cystinosis Foundation USA
www.cystinosis.com

Cystinosis UK
www.cystinosis.org.uk

Cystinosis Australia
http://australia.cystinosis.com

Cystinosis Foundation Germany
www.cystinose-selbsthilfe.de

Cystinosis Foundation Ireland
www.cystinosis.ie

Cystinosis Mexico AC
www.cystinosismexico.org