Partners

The growing success of the Cystinosis Research Foundation is due to the outpouring of love and support from cystinosis families around the country, supporting each other in our mutual effort to cure cystinosis. Their friends and families have embraced the cystinosis cause and are actively and enthusiastically raising funds to support cystinosis research through CRF. Their prayers, financial support and commitment have brought us closer than ever to extraordinary changes in the daily lives of children with cystinosis.

Cystinosis Awareness & Research Effort (CARE)

Gabbie Strauss was diagnosed with cystinosis in January 2009.  Her family has established the only nonprofit foundation in Canada to support cystinosis research.  CARE works in partnership with the Cystinosis Research Foundation to raise funds and awareness for cystinosis research.         www.cystinosis.ca  www.gabbieswish.com

CARE has received a generous donation of a 72 foot waterfall from Colonial Brick & Stone.  The water feature is for sale and would make an incredible addition to any home or public space. To learn more, visit http://www.cystinosis.ca/news.html#f3

Jenna & Patrick’s Foundation of Hope

Three years ago, Teresa and Kevin Partington’s twin 5 year-old children were diagnosed with cystinosis. The Cystinosis Research Foundation and Jenna & Patrick's Foundation of Hope are intricately united by the race to save our children’s lives and our quest to find better treatments and a cure for all those who suffer from cystinosis. We are honored to collaborate with the Partington family and their foundation.
www.jennaandpatrick.org

Joshua's Journey of Hope

Joshua Clarke was diagnosed with cystinosis at 15 months of age in 2008. Joshua's family and friends have joined together to establish Joshua's Journey of Hope to raise funds for research and awareness, in partnership with the Cystinosis Research Foundation.  www.joshuasjourney.org

Hope for Holt

Holt Grier was diagnosed with cystinosis in February 2007, three months after his first birthday. Holt’s family and friends have organized a partnership with the Cystinosis Research Foundation called Hope for Holt to raise awareness about cystinosis and are actively engaged in fundraising to further research and find a cure.
www.hopeforholt.com

24 Hours for Hank

Henry Sturgis was diagnosed with cystinosis in November 2007 when he was 16 months old. 24 hours for Hank is a non-profit foundation set up by friends and family in partnership with the Cystinosis Research Foundation to help find a cure for Henry and all children that suffer from cystinosis.
www.24hoursforhank.org

Tina's Hope for a Cure

Tina Flerchinger was just 17 months old when she was diagnosed with cystinosis. It hasn’t been an easy three years for the Flerchinger family but Tina’s courage and perseverance has proved amazing. The Cystinosis Research Foundation is honored to be partnering with Tina’s family and friends to fund research for more effective treatments and bring us hope for a cure.
www.tinashopeforacure.org