Aidan’s Army Golfs Fore a Cure Raises $73,000 for Research

Dear Friends: Another win for Aidan’s Army!  Over 100 friends and family members from across the country joined the fight to cure cystinosis on July 29, 2019, at Forest Lake Country Club in Bloomfield Hills, Michigan. Aidan’s Army is strong and raised over $73,000 for cystinosis research. We are forever thankful to our amazing donors […]

Kenzie’s Driving Fore A Cure Golf Tournament

Kenzie was diagnosed with a rare disease called cystinosis when she was 2 years old. This disease causes damage to every cell and slowly destroys all the organs in the body including the Kidneys, Liver, Eyes, Muscles, Thyroid, and  Brain.  We held this golf tournament fundraiser to raise awareness and funds for research for better […]

Cystinosis Research Foundation Awards $1,761,223 In New Research Grants

We are excited to announce that the CRF Scientific Review Board reviewed the cystinosis grant requests and recommended seven applications for funding, which total $1,761,223. Included was an award of $765,192 for our brilliant CRF researcher, Stéphanie Cherqui, PhD of UCSD, for the stem cell and gene therapy clinical trial, covering costs above and beyond the […]