Dr. Cherqui with patient in hospital Cystinosis Research Foundation

The First Cystinosis Patient was Transplanted!

October 7, 2019 was a day that will forever be remembered as a historic day for adults and children with cystinosis and their families. It’s a day that could very well mark the beginning of a world without cystinosis. Jordan Janz, age 20 from Consort, Alberta, was the first patient to receive a genetically modified […]

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