All Out For Ayla and Otto
All Out For Ayla and Otto Maher Celebration Please save the date to go “All Out for Ayla and Otto” on Sunday, October 13, 2024, at the Roundhead Brewing Company from 1:00 to 4:00 pm. Join us, along with our friends and family, for an afternoon of food, refreshments, and fun activities for the children. […]
CRF Scientific Review Board Welcomes Two New Members
CRF is excited to announce the addition of two outstanding scientists to the CRF Scientific Review Board (SRB). These new members are experts in the field of cystinosis and have a deep commitment to the cystinosis community. With the expertise and dedication of our Scientific Review Board, we are changing the future of cystinosis. Please […]
Research Grant Progress Report by Justine Bacchetta, MD, PhD, Hospices Civils de Lyon, France
CRF awarded Justine Bacchetta, MD, PhD, and Irma Machuca-Gayet, PhD, their first two-year cystinosis research grant in 2018 for the study of cysteamine toxicity on the bone that became known as the CYSTEABONE project. Additional grants have been awarded every two years since then to continue the research on the pathophysiology of bone disease in […]