The Cure for Carson golf tournament is dedicated to raising awareness and funds for cystinosis research. Prior to Carson’s diagnosis, we had never heard of cystinosis, yet it is a life-altering, rare disease that deserves greater visibility.  Through this event, we hope to educate our community, support ongoing research, and shine a light on cystinosis and other rare diseases affecting families every day.

Please save the date for Saturday, April 10, 2027, at the Fernandina Beach Golf Club on Amelia Island, Florida, and join us for a fun-filled day of golf with friends and family in support of critical cystinosis research in honor of Carson. More information will be coming soon!

Emily, Daniel, Adalyn and Carson Hughes