Leadership and Staff
Cystinosis Research Foundation Leadership and Staff
Nancy J. Stack, President and Founding Trustee, volunteers her time and provides the vision and guiding leadership for the Foundation.
Zoe R. Solsby, Vice President, has been a part-time paid consultant for CRF since 2003, handling the day to day operations and special projects.
Stacy Johnson, Administrative Assistant, is an employee of CRF and is responsible for the administrative duties of the foundation.
The CRF Board of Trustees is comprised of business and scientific leaders and cystinosis family advocates who provide the Foundation’s governance and guidance.
The Scientific Review Board is comprised of leading cystinosis scientists, researchers and clinicians from around the world. The CRF Scientific Review Board guides the biannual call for new research proposals. They evaluate and analyze every research application submitted for consideration. After careful analysis of the scientific merit of each proposal, the Scientific Review Board recommends applications for funding by CRF.