Natalie’s Wish Events

A Night of a Thousand Stars – 2014 Natalie’s Wish Celebration

Saturday, April 5, 2014 Balboa Bay Resort, Newport Beach Thank you to all of the donors, cystinosis families and friends who attended the Natalie’s Wish event on Saturday night. We raised $2.3 million for new research aimed at finding new treatments and a cure. Natalie’s wish is a wish heard…

Day of Hope 2014 – CRF Family Conference

The 2014 Day of Hope Family Conference will take place over three days and culminate on Saturday night at the Twelfth Annual Natalie’s Wish Celebration. The conference will focus on the progress CRF-funded researchers have made over the past several years. Sessions will include: Research news about stem and gene…

Sixth Annual CRF Fore a Cure Golf Tournament Raises $360,000

Celebrating another record-breaking year we want to thank our community of business leaders, the powerhouse golf committee, our dedicated volunteers and the generous sponsorship support of nearly 200 companies and individuals who helped make this the most outstanding tournament yet. Since 2007, the Fore a Cure golf tournaments have contributed…

Save the Dates for Day of Hope Family Conference 2014

Please mark your calendar for the 2014 Day of Hope Family Conference; plan on joining us as families from around the world gather in beautiful Newport Beach, California. Cystinosis researchers will provide comprehensive updates on their research advancements and answer questions about Cystinosis. This conference is the perfect venue for…

2013 DAY OF HOPE – CRF FAMILY CONFERENCE

APRIL 19 – APRIL 21, 2013 Cystinosis Families from around the nation traveled to the beautiful Balboa Bay resort in Newport Beach for the 2013 Cystinosis Research Foundation Day of Hope Family Conference.  The event kicked off with a Mexican Fiesta on Thursday and went into full swing early Friday…

CRF Raises $2.2 Million To Cure Cystinosis!

Researchers Gain In Developing New Treatments For Rare Disease NEWPORT BEACH, Calif. — The Cystinosis Research Foundation raised $2.2 million at its 11th anniversary celebration of Natalie’s Wish, where it was announced that researchers believe a promising new treatment to save the eyesight of cystinosis patients may be ready for…