Board of Trustees

The CRF Board of Trustees is comprised of business and scientific leaders and cystinosis family advocates who provide the foundation’s governance and guidance.

CHAIR
Nancy J. Stack, Founding Trustee and President
Cystinosis Research Foundation

VICE CHAIR
Geoffrey L. Stack, Founding Partner
SRG Partners

TREASURER
Donald L. Solsby, President
Compass Direct

BOARD MEMBERS 
Marcu Alexander, Founder
Hearts for Hadley

Stéphanie Cherqui, PhD, Professor
University of California, San Diego

Bruce Crair, Retired Executive
Boingo Wireless

Clay Emerson, PhD, PD, CFM, Sr. Technical Director
Princeton Hydro, LLC
Hope for Brooke

Jill Emerson, CPA
Hope for Brooke

Denice Flerchinger, Founder
Tina’s Hope For A Cure


Stephen L. Jenkins, MD
University of Utah Hospital
Sam & Lars Hope for a Cure

Angela Kirchhof
Hope for Hayden

Barbara Kulyk 
Chief Administrative Officer for the Village of Consort

David W. Mossman
Aztec Mustang 

Kristen Murray
Seth’s Circle of Hope

Kevin Partington, Executive Director
Cushman & Wakefield
Jenna & Patrick’s Foundation of Hope

Teresa Partington, Founder
Jenna & Patrick’s Foundation of Hope

Brian Sturgis, Sr. Director, Business Operations
SimulStat Incorporated
24 Hours for Hank

Scientific Review Board Cystinosis Research Foundation

We are grateful to the CRF Scientific Review Board for their leadership and guidance.  Pictured from left: Francesco Emma, MD, Corinne Antignac, MD, PhD, Stéphanie Cherqui, PhD, Sergio Catz, PhD, Julie Ingelfinger, MD, and Stephen Jenkins, MD.  Not pictured are Laurence Greenbaum, MD, PhD, FAAP, Paul Grimm, MD, and Aude Servais, MD, PhD. 

Scientific Review Board

The CRF Scientific Review Board (SRB) is comprised of leading cystinosis scientists, researchers, and clinicians from around the world. The CRF Scientific Review Board guides the bi-annual call for new research proposals. The SRB members analyze and evaluate every research application submitted to CRF and are actively involved in the grant review process. The SRB advises the Cystinosis Research Foundation on the merit and worthiness of each application and then recommends the proposals for funding consideration. The SRB has been the guiding light for CRF’s strategy focused on funding top researchers at leading institutions around the world.

The Cystinosis Research Foundation is indebted to our Scientific Review Board members for their leadership, guidance, and commitment to improving the lives of those with cystinosis.

Board Members

CHAIR 
Stéphanie Cherqui, PhD
Professor
Department of Pediatrics 
Division of Genetics
University of California, San Diego 
San Diego, California

Sergio D. Catz, PhD
Professor
Molecular and Experimental Medicine
The Scripps Research Institute
La Jolla, California

Francesco Emma, MD
Head of Pediatric Nephrology, Director of Nephrology Laboratory
Bambino Gesù Children’s Hospital
Rome, ITALY

Laurence Greenbaum, MD, PhD
Division Director of Pediatric Nephrology
Bernard Marcus Professor of Pediatric Nephrology 
Emory University School of Medicine and Children’s Healthcare
Atlanta, Georgia

Paul C. Grimm, MD
Professor of Pediatrics, Pediatric Nephrology
Stanford University School of Medicine
Palo Alto, California

Julie R. Ingelfinger, MD
Deputy Editor of the New England Journal of Medicine
Professor of Pediatrics
Harvard Medical School
Boston, Massachusetts

Stephen L. Jenkins, MD
Assistant Professor, Hospitalist
Department of Internal Medicine
University of Utah Hospital
Salt Lake City, Utah

Aude Servais, MD, PhD
Senior Nephrologist, Department of Adult Nephrology
Necker Hospital, Paris Descartes University
Paris, France

CRF Medical and Scientific Advisory Board

Bruce A. Barshop, MD, PhD
University of California, San Diego
La Jolla, CA

Stéphanie Cherqui, PhD
University of California, San Diego
La Jolla, CA

Ranjan Dohil, MD
University of California, San Diego
La Jolla, CA

Laurence Greenbaum, MD, PhD
Emory University School of Medicine and Children’s Healthcare
Atlanta, GA

Paul C. Grimm, MD
Professor of Pediatrics 
Stanford University School of Medicine
Palo Alto, CA

Stephen L. Jenkins, MD
University of Utah Hospital
Salt Lake City, Utah

Robert Mak, MD, PhD
University of California, San Diego
La Jolla, CA

Julian Midgley, BM, BCh
Alberta Children’s Hospital
Calgary, AB, Canada

Doris Trauner, MD
University of California, San Diego
La Jolla, CA