Lola’s Curl for a Cure
Melissa and Jim Long hosted their second annual Lola’s Curl for a Cure, in honor of their daughter Lola on Saturday, March 3, 2018 in Chaska Minnesota’s Curling and Event Center. The event was sold-out with the curling tournament extremely popular because of the U.S. Olympic team’s success at the winter games. The Long family are very grateful to the sponsors, the community and all those who participated. The event was even more successful thank last year, raising more than $80,000 for cystinosis research.
Lola was diagnosed with cystinosis in June 2013. Cystinosis is a devastating ultra-rare disease with only 2000 cases diagnosed worldwide. By most outward appearances Lola and other children with her disease appear somewhat normal, however internally every cell within their bodies is being ravaged by the disease – even with medications over time cystinosis will destroy organs and core functions with-in their bodies. Currently there is no cure and cystinosis is considered a terminal disease. We are grateful for your support and joining our quest for the cure to help Lola and all the other children with cystinosis.
Download Curl for a Cure Flyer
Melissa and Jim Long