The Cysintosis Research Foundation is providing the following information as a service to the community. This information is intended for general education purposes only, and should not be construed as advising on diagnosis or treatment of this or any other medical condition.
Clinical Genetic Testing – Test must be ordered by a physician
National Organization for Rare Disorders (NORD)
University of California, San Diego
Raptor Pharmaceuticals Corp.
U.S. Department of Health & Human Services – National Health Information Center
Hide and Seek Foundation for Lysosomal Disease Research
Cystinosis Foundation USA
Cystinosis Foundation Germany
Cystinosis Foundation Ireland
Cystinosis Mexico AC