In memory of Weston Tschannen
Weston was born on January 21, 1993 along with his twin brother William. He was diagnosed with Cystinosis at the age of 17 months and took on this disease with a fighting spirit. He never let Cystinosis define who he was. It was just a daily annoyance that he had to endure in order to enjoy all that life had to offer him. A lover of sports, cooking, and music, Weston demonstrated his strength of character by finishing fifth in the 103 pound division of the Missouri State High School Wrestling Championships in 2009. Winning the last match of his 10 year commitment to the sport, Weston defeated his opponent with only 10% kidney function. Weston suffered complete renal failure at age 16. Receiving the loving gift of a kidney from his mother in 2009, Weston experienced a new lease on life until that kidney failed in 2014, when he began dialysis for the remainder of his life.
Weston further exemplified his determination to overcome life’s challenges by completing his last year of college while undergoing daily dialysis treatments. A year ago, Weston started experiencing Grand Mal seizures and would later be diagnosed with Epilepsy. This was particularly challenging because he could no longer drive. After further testing, Weston was put on two different seizure meds and had not had a seizure since. He graduated in May from the University of Missouri in Columbia with a Bachelor of Science degree with an emphasis in restaurant and hotel management. Most recently, following his graduation from college, Weston began interning with the research department of Raptor Pharmaceuticals (now Horizon Pharmaceuticals), assisting in the development of programs and town hall meetings to provide help for sufferers of chronic illness.
Weston had a wonderful spirit and such a zest for life! He accomplished so much in his short 23 years and we are so proud of him and so blessed to call him our son. Unfortunately, Weston’s life was cut short on August 28, 2016 due to a very high potassium level and another Grand Mal seizure. His twin brother William, who is an EMT, did everything he could to save his brother’s life but God had other plans for Weston. Devoted to his family, Weston was a loving, funny, loyal companion to his many friends and members of his north Missouri community. He taught us so much throughout the years in dealing with Cystinosis and continues to teach us how to live life to the fullest and enjoy every minute!
On Saturday, May 13, 2017, we are celebrating Weston’s life and love of golf by hosting the first annual Weston Tschannen Memorial Golf Tournament in Brookfield, Missouri. All of the proceeds will go to the Cystinosis Research Foundation to help support research and hopefully a cure someday.
If you cannot attend the golf tournament, please consider making a donation to this wonderful organization in memory of Weston.
Barb & Terry Tschannen and family