Patient 1 Update
Barb and Jeff Kulyk discuss Jordan’s Journey
Patient 3 and his mother, Rocky, discuss their experience
From CRF-funded researcher Stéphanie Cherqui, PhD
Brandon & Mel Parsel share Henley’s Story
CRF-funded researcher Reza Seyedsadjadi, MD
CRF-funded researcher Morgan Fedorchak, PhD
From the CRF families
We have missed all of you, and although we hoped we would be able to meet in-person in 2021, we could not safely do so. This year, our annual Natalie’s Wish fundraiser is an interactive video program that features an update on CRF, project updates from key CRF researchers, a heartwarming story from a newly diagnosed family, and an update from two of the volunteers in the stem cell and gene therapy clinical trial. You don’t want to miss the special message from our family and patient community who want to express their gratitude to all those who support our research program and our families.
We are pleased to share our fundraising program with you today. The program will be available to view and explore any time that is convenient for you. While we have faced challenges because of the pandemic, our research teams have continued to work every day to find better treatments and a cure for our adults and children with cystinosis. Thank you for your past commitment to our research program and thank you for helping us raise funds this year so that we can continue to fund ground-breaking research that will undoubtedly lead to a cure for cystinosis.
The Cystinosis Research Foundation is Eternally Grateful to all its 2021 Natalie's Wish Celebration donors
$500,000 AND ABOVE
- The Thomas Haas Family
- Nancy and Geoffrey Stack Family Foundation
$200,000 – $300,000
- Traci and Tom Gendron
- The Hayde Family Trust
- The David Pyle Family
$100,000 – $199,999
- Name
$40,000 – $55,000
- Name
$25,000
- Name
$20,000
- Name
$15,000
- Name
$10,000 – $14,999
- Name
