The mission of the Cystinosis Research Foundation is to support bench, clinical and translational cystinosis research to find better treatments and a cure for cystinosis. Global calls for grant applications are made in the spring and autumn of each year.
The Cystinosis Research Foundation works closely with the CRF Scientific Review Board (SRB) comprised of leading experts in the field of cystinosis who determine the scientific validity and merit of the grant proposals based on the NIH scale of standards. The SRB advises the Cystinosis Research Foundation on the scientific merit of each proposal.
The Cystinosis Research Foundation will be announcing the 2019 Fall Call for Grant Proposals and Fellowship Applications in September. Currently, the Cystinosis Research Foundation has $2.5 Million available for research and fellowship grants. The number of awards and their value will depend on the number of outstanding proposals and the funds available at the time.
For Grant Awardees
CRF required reporting forms after receiving a grant. Progress reports are required at regular intervals for the duration of the study and a final report is required at the study’s conclusion. These progress reports should be an executive overview of the study’s progress against key milestones and should include any personnel updates. The progress reports must also include a budget report which shall be a one-page detailed accounting of budget receipts and expenditures. Grant payments will be linked to these reports.
Download: Budget Report of Receipt and Expenditures (Excel)
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About The Scientific Review Board The Cystinosis Research Foundation Scientific Review Board is composed of leading cystinosis scientists, researchers, and doctors from around the world. The members are actively involved in the grant review process and advise the Cystinosis Research Foundation on the merit of each proposal, submit funding recommendations and offer general research guidelines. We are indebted to the Scientific Review Board members for their guidance and commitment to helping our children. Read More