This Is Our Fight For The Cure – 2016 Natalie’s Wish Celebration
A Record Breaking $3.3 Million Was Raised For Research
On April 9, the ballroom at the Island Hotel was filled with 485 people who joined us for the Natalie’s Wish Celebration which turned out to be an evening of extraordinary generosity. Singer-songwriter Rachel Platten set the perfect tone for the evening when she performed her powerful blockbuster hit Fight Song during her opening set. Surrounded by cystinosis children who enthusiastically sang along, Rachel’s lyrics could not have been more on point.
This year Lauren Hartz form Pennsylvania spoke from her heart about her son Landon’s life with cystinosis. Her heartbreaking and somehow still uplifting talk brought tears to the eyes of many guests as she shared the realities of cystinosis and the hopes that she and her husband, Jimmy, have for Landon as we journey to a cure.
The most touching aspect of the evening was knowing that 55 cystinosis families and adults with cystinosis from around the world had joined us for the event. Many of those families raise funds for CRF and cystinosis research in their own communities. It is always a highlight of our celebration when those families proudly parade on stage to present their checks. We are a small community but we are strong and united, and on this night we raised more than $3.3 million to bring our goal of a cure closer than ever to reality.
We look forward to having you join us at next year’s Natalie’s Wish Celebration on Saturday, April 1, 2017!