Month: January 2020

Jordan Janz and mom Cystinosis Research Foundation

The First Stem Cell Transplanted Cystinosis Patient Returns Home!

We are excited to report that Jordan Janz, the first cystinosis patient to receive the autologous stem cell and gene therapy treatment as part of the FDA approved clinical trial, returned home to Canada. Jordan and his mom, Barbara Kulyk, lived in San Diego after Jordan was transplanted on October 7, 2019. Jordan is a true …

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COVID-19 And Cystinosis Thoughts About Returning To School and Work By Paul Grimm, MD

Thoughts on Returning to School and Work Paul Grimm, MD Regarding return to school in the fall for patients with cystinosis or post kidney transplant or are on dialysis what is a person to do? This is a question being asked all over the country and the world. I am involved with a number of …

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