Tools for Fundraising

Planning and organizing a fundraiser is one way to support the Cystinosis Research Foundation and the cystinosis community. Fundraising events help educate the public about cystinosis and the critical need for funding cystinosis research. With your help CRF continues to fund cystinosis research in areas of muscle wasting, neurological issues, corneal cystinosis, kidney disease and stem cell and gene therapy.

Getting started is often the most difficult part of fundraising but the Cystinosis Research Foundation (CRF) is here to help you plan and execute your cystinosis fundraising event. CRF is happy to provide you with fundraising resources and support!

Below are a few tips to get you started.

  • Brainstorm with your friends and family for fundraising ideas. Think about and decide what type of event would work best for you and your community.
  • Check our monthly Star Facts newsletter to see what other families are doing in their communities.
  • Start the planning process early and ask friends to help. You will need people who can help keep you organized and pay special attention to details.
  • Identify potential donors, sponsors and others who will help make your event a success.
  • Be willing to tell your personal story as it relates to cystinosis (are you a parent of a child with cystinosis, a relative, friend, neighbor?). Your enthusiasm and vision will inspire others and create synergy in your group.

Once you decide on the type of event you want to organize, CRF can assist you with your fundraising efforts.

Below are just a few of the items CRF will provide:

  • CRF Fundraising Guidelines
  • A CRF brochure with your child’s photo and name on the cover
  • Assistance with logo design for your event
  • Customized solicitation letter to use when asking local businesses for donations
  • Sample registration, sponsorship and gift in kind forms
  • A support letter from CRF naming you as a partner in fundraising for cystinosis research
  • A page on the CRF website with your personal web address to sell tickets, sponsorships or receive donations
  • Promotion of your event in our Star Facts e-newsletter and event listing in Cystinosis Magazine

Family Event Information Form

If you’d like CRF to create a page on our website for your fundraiser, please complete the form below. Once we receive your information, we will be in touch to help you through the process. Thank you for supporting CRF and our mission to fund research for improved treatments and to find the cure!

  • Accepted file types: doc, docx, pdf, jpg.
    File types allowed - pdf, doc, docx, jpg

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