Clinical Trial Now Recruiting Nephropathic Cystinosis and Distal Myopathy Patients!
Dr. Reza Seyedsadjadi is looking for participants to volunteer for an interventional study to characterize the mechanism of muscular involvement in swallowing in patients with
Final Research Report Olivier Devuyst, MD, PhD, Principal Investigator, and Marine Berquez, PhD, Co-Principal Investigator
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Novartis Statement to the Cystinosis Community
October 24, 2024 Dear Cystinosis Community, We hope that you are enjoying the fall. The Novartis teams have been hard at work collaborating with the
Join Dr. Donny Suh live on November 5, 2024 with conversation and information on ocular cystinosis!
For those of you who attended the Day of Hope this year, we introduced you to Dr. Donny Suh from UC Irvine. He is an
Research Update-Advancing the Understanding of Renal Fanconi Syndrome in Cystinosis by Stéphanie Cherqui
Stéphanie Cherqui, PhD, Principal Investigator, University of California, San Diego “Advancing the Understanding of Renal Fanconi Syndrome in Cystinosis” Over the last few years, CRF
Research Update by Dr. Jennifer Hollywood and Dr. Alan Davidson A New Version of Cysteamine?
Jennifer Hollywood, PhD, University College Cork, Ireland, and Alan Davidson, PhD, University of Auckland, New Zealand Drs. Hollywood and Davidson are using rodent models to
