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Stem Cell And Gene Therapy Webinar Update Video Now Available!
September 15, 2021
Dr. Cherqui Update from UCSD Stem Cell and Gene Therapy Clinical Trial!
February 16, 2021
The Third Patient Was Transplanted November 16, 2020!
November 17, 2020

The Third Patient Was Transplanted November 16, 2020!

November 17, 2020

From Rocky Seachord, Jacob’s Mom: “He is in very good spirits and I think it is a good omen that he is in the very

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Stem Cell Trial Update: One Year Later-Jordan Janz Shares His Thoughts

October 6, 2020

I definitely feel better today than when I had cystinosis. In the mornings I can go a couple of hours or so without eating and

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Research Progress Report by Liang Feng, PhD, Mentor and Xue Guo, PhD, Fellow

October 5, 2020

CRF has supported Dr. Feng at Stanford University since 2015, awarding him $525,000 for his important research on the Molecular Mechanisms of Cystinosis. The goal

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Research Progress Report Update by Pierre J. Courtoy, MD, PhD

September 25, 2020

Evaluation of Ctns-/-Mice Protection by Oral Supplementation with Basic Amino-Acids:  Focus on Kidneys – Extension to Another Colony Since 2016, CRF has supported Pierre Courtoy

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Research Progress Update by Benjamin (Beno) Freedman, PhD,

August 12, 2020

Developing A Therapeutic Strategy For Cystinotic Nephropathy With iPS Cells CRF has supported Dr. Freedman since 2018, awarding $392,316 for his important study at the

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CRF Awards $2,629,490 For 2020 Spring Research Grants

August 11, 2020

2020 Spring Grants Announced This past Spring, CRF funded 10 new grants, 4 research grant extensions, and 1 lab equipment grant, totaling more than $2,629,490 

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Who We Are

  • What is Cystinosis?
  • About CRF
  • Leadership
  • Financials
  • Videos
  • Cystinosis Magazine
  • CRF News
  • Contact

For Families

  • Family Stories
  • Canadian Families
  • Current Clinical Trials
  • Cure Cystinosis International Registry (CCIR)
  • Tools for Fundraising
  • Resources

For Researchers

  • Research Overview
  • Apply for Research Grant
  • Grants Awarded
  • Published Studies
  • International Cystinosis Research Symposium

Events

  • Natalie's Wish
  • Day of Hope

Together We Shine Bright

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  • info@cystinosisresearch.org
  • (949) 223-7610
  • info@cystinosisresearch.org