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Natalie Stack 5th Patient Stem Cell and Gene Therapy Trial – March 29, 2022
August 3, 2022
Tyler Joynt – 4th Patient in the Stem Cell and Gene Therapy Trial on November 15, 2021
August 3, 2022
Stem Cell Trial Phase I/II Updates by Stéphanie Cherqui, PhD
August 3, 2022

Research Grant Progress Report by Liang Feng, PhD, Stanford University

October 4, 2021

Researcher Liang Feng, Associate Professor of Molecular and Cellular Physiology at Stanford University, and Research Fellow Xue Guo received a grant award in 2020 to

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Stem Cell And Gene Therapy Webinar Update Video Now Available!

September 15, 2021

Stem Cell and Gene Therapy Trial Update with Dr. Stéphanie Cherqui, Jordan Janz, and Barb Kulyk Presented Tuesday, October 27, 2020 We had a record

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Final Report – Development and Characterization of a Rat Model of Cystinosis

September 15, 2021

In 2018, CRF awarded a grant to Olivier Devuyst, MD, PhD, University of Zurich, Switzerland, and Francesco Emma, MD, Bambino Gesù Pediatric Hospital, Rome, Italy,

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CRF Research Insights – Your Donations at Work!

August 3, 2021

Did you know that CRF is the largest fund provider of cystinosis research in the world?  We have funded over 206 multi-year grants in 12

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CRF Research Insights – Your Donations Are Working for a Cure

June 10, 2021

Did you know that your donations are at work all year long?  CRF awards new grants twice a year to ensure that your donations are

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Research Progress Report by Jennifer Hollywood, PhD, and Alan Davidson, PhD, University of Auckland, New Zealand

March 10, 2021

The goal of this study is to conduct therapeutic drug intervention studies in Ctns knock-out rats to determine whether a combination treatment of cysteamine and

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Who We Are

  • What is Cystinosis?
  • About CRF
  • Leadership
  • Financials
  • Videos
  • Cystinosis Magazine
  • CRF News
  • Contact

For Families

  • Family Stories
  • Canadian Families
  • Current Clinical Trials
  • Cure Cystinosis International Registry (CCIR)
  • Tools for Fundraising
  • Resources

For Researchers

  • Research Overview
  • Apply for Research Grant
  • Grants Awarded
  • Published Studies
  • International Cystinosis Research Symposium

Events

  • Natalie's Wish
  • Day of Hope

Together We Shine Bright

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  • (949) 223-7610
  • info@cystinosisresearch.org
  • (949) 223-7610
  • info@cystinosisresearch.org