COVID-19 And Cystinosis Thoughts About Returning To School and Work By Paul Grimm, MD
Thoughts on Returning to School and Work Paul Grimm, MD Regarding return to school in the fall for patients with cystinosis or post kidney transplant
Could This Be The Cure?
The early results are in and the news is promising! Jordan Janz was transplanted on October 7, 2019. Since that time, he has not had any cysteamine
The First Stem Cell Transplanted Cystinosis Patient Returns Home!
We are excited to report that Jordan Janz, the first cystinosis patient to receive the autologous stem cell and gene therapy treatment as part of
CRF Awards $2,617,711 in New Grants in 2019
We are pleased to announce that CRF recently approved three new research grants totaling $856,488. The grants were awarded to Dr. Pierre Courtoy at de Duve
Thank You for Giving!
Your donations mean a brighter future for our children and adults with cystinosis. Together we are turning dreaming into doing! With the generosity and support
The First Cystinosis Patient was Transplanted!
October 7, 2019 was a day that will forever be remembered as a historic day for adults and children with cystinosis and their families. It’s
