Hadley Alexander

Hadley Alexander

“Hearts for Hadley has held three separate fundraising events at local wineries and a brewery for cystinosis research.”
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Isaac Andrews

Isaac Andrews

“His laugh, smile and storytelling ability impacts every person who is lucky enough to meet him.”
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Lily Beauregard

Lily Beauregard

“Lily continues to impress us and inspires us on a daily basis.”
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Seth deBruyn

Seth deBruyn

“We believe that children like Seth will soon know a life free of disease and suffering.”
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Brooke Emerson

Brooke Emerson

“Brooke is a vibrant little girl full of life, laughter and curiosity.”
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Ethan Fenn

Ethan Fenn

“To Ethan, cystinosis is just a part of his life. It will not keep him down, nothing will.”
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Tina Flerchinger

Tina Flerchinger

“Tina has overcome many obstacles with her strong faith, courage, and determination.”
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Landon Hartz

Landon Hartz

“He has this beautiful gift of accepting himself exactly how he is and striving for a life that is even better.”
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Sam & Lars Jenkins

Sam & Lars Jenkins

“Cystinosis has unveiled a whole other world of human struggle, service, and love.”
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Josie Kanupke

Josie Kanupke

“We have no doubt that she will continue to thrive and one day be cured.”
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Shannon Keizer

Shannon Keizer

“Without Cystinosis, I would not be the person I am today.”
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Aarav Khalasi

Aarav Khalasi

“Join us in our quest for the cure!”
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Hayden Kirchhof

Hayden Kirchhof

“Hayden is the toughest, bravest, and most resilient person I know.”
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Jake Krahe

Jake Krahe

“In 2008, Jake was diagnosed with cystinosis, a rare metabolic disease that affects approximately 500 children and young adults in the U.S.”
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Maddie Lawrence

Maddie Lawrence

“I need to know that my daughter and all other cystinosis warriors can live a full life.”
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Olivia Little

Olivia Little

“We are all the same. We are all different. We are all normal. We all belong.”
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Lola Long

Lola Long

“Lola is a funny, outgoing, happy six-year-old.”
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Keegan Manz

Keegan Manz

“His personality lights up our world and is so contagious people cannot help smiling when in his presence.”
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Aidan O'Leary

Aidan O'Leary

“Aidan wakes up every day with a huge smile on his face, happy to conquer another day.”
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Jenna & Patrick Partington

Jenna & Patrick Partington

“It is awe inspiring to consider what is happening in this community. We are forever grateful for your loving support.”
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Morgan Peachman

Morgan Peachman

“Morgan loves golf, tennis, shopping, and hanging out with her friends.”
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Charlie Simpson

Charlie Simpson

“Please share Charlie’s story with anyone interested in learning more about this very rare disease and the efforts to cure it.”
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Henry Sturgis

Henry Sturgis

“People are looking for a way to help others, people are good, and people want to Fight for Hank.”
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Emma Suetta

Emma Suetta

“Laughter gives you reason to hope. Tears give you a reason to fight.”
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Kaden Thomas

Kaden Thomas

“We have learned to take things as they come and live day by day.”
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