CRF and Canadian Families Unite to Fund Research

Canadian cystinosis families are committed CRF partners working with CRF to fund research that will lead to better treatments and a cure.  Families across Canada continue to organize and plan events to raise money for research.

The Cystinosis Awareness and Research Effort (CARE), has partnered with Canada Helps to establish the Canadian Cystinosis Research Foundation. This fund is administered by Aqueduct Foundation and allows for an efficient and effective fundraising process, ensuring that Canadians who donate using the button below will receive a charitable tax receipt. Canadians also have the option to donate directly to CRF if they so desire, however, no charitable tax receipt will be issued.   

Working together, our two countries have united in their efforts to raise awareness about cystinosis, to advocate on behalf of all children and adults with cystinosis, and to ensure that we will fund the most qualified researchers in the world.  Since 2016, Canadian families have directly funded CRF research with $875,512 in grant payments through the Aqueduct Foundation. CRF is incredibly grateful for the support of our Canadian cystinosis families and friends. 

If you would like to learn more about how to fundraise in Canada, please contact Zoe Solsby at