Cystinosis Families Together Again
Thursday, April 4 - Saturday, April 6, 2024
Catamaran Resort Hotel and Spa
3999 Mission Boulevard, San Diego, CA 92109
CRF Day of Hope Family Conference
2024 Day of Hope Information
We are excited to see you in sunny San Diego at the 2024 Day of Hope Family Conference! Join us for three inspiring days spent with fellow members of the cystinosis community as we renew our friendships and strengthen the bonds that created the remarkable CRF family and research community. When we are together, magic happens!
On Thursday, April 4, the conference will begin with introductions followed by a welcome dinner. The sessions start on Friday morning and will conclude Saturday following lunch. Confirmed speakers include Bruce Barshop, MD, PhD, Sergio Catz, PhD, Stéphanie Cherqui, PhD, Morgan DiLeo, PhD, Benjamin “Beno” Freedman, PhD, Paul Grimm, MD, Larry Greenbaum, MD, PhD, Jennifer Hollywood, PhD, Stephen Jenkins, MD, Julian Midgley, MD, Sophie Molholm, PhD and Donny Suh, MD.
CRF is delighted once again to provide an outstanding complimentary childcare program for infants and children up to 12 years of age during the conference sessions, and there will be a special surprise for the teens!
Conference Overview
THURSDAY AFTERNOON
Registration Opens at 3:00 p.m.
Welcome and Introductions
Mexican Fiesta Dinner 6:00 p.m.
FRIDAY
Family Breakfast
Children’s Activities
Conference Sessions
Family Lunch
Conference Sessions
Dinner Under the Stars
SATURDAY
Family Breakfast
Children’s Activities
Conference Sessions
Family Lunch
Family Assistance Fund
Thank you for your interest in joining us for the 2024 Day of Hope conference. The conference promises to be a weekend of hope and inspiration. We are pleased to let you know that a fund has been expressly created to help families and patients with some of the costs associated with the conference. We want to help everyone who needs assistance; however, we have a limited amount of funds available and will do our best to help everyone who needs it.
We encourage you to submit the Family Assistance Fund application as soon as possible. Please note that the information provided on the application is confidential and will not be shared with anyone other than the CRF family assistance committee and CRF staff.
Download the application form here.
Email the completed form to info@cystinosisresearch.org.
Catamaran Resort Accommodations
General Info
The 2024 Day of Hope Conference will be held at the Catamaran Resort Hotel, a beachfront hotel on the sparkling shores of California’s beautiful coast. We look forward to welcoming our cystinosis families and encourage you to register as soon as you can to guarantee your attendance and ensure your hotel accommodations.
CRF has secured hotel rooms at a special flat rate of $279 per night for cystinosis families which includes grandparents.
The special room rate for other guests is $279 plus taxes and fees is $356 per night. These special rates are only available by booking accommodations through our dedicated reservation page which can be found using the buttons to the right.
There is no charge to attend the conference, and all meals beginning Thursday afternoon through the Saturday luncheon are included free of charge. Children’s activities and childcare during the conference sessions for infants and children up to 12 years of age are complimentary for all attending families (pre-registration is required).
CYSTINOSIS FAMILIES: Book Your Room
CRF has secured hotel rooms at a special flat rate of $279 per night for cystinosis families. Please click the link below to book your room.
Check-in Time info
Hotel check-in time is 4:00 P.M.
Check-out time is 11:00 A.M.
OTher GUESTS: Book your room
The discounted rate of $279 plus tax and fees is for extended family members, friends, and guests. Please click the button below to book your room.
CRF Day of Hope Co-Chairs Welcome You
Clay Emerson, PhD, PE, CFM, Hope for Brooke, CRF Board Member
Jill Emerson, CPA, Hope for Brooke, CRF Board Member
Stephen Jenkins, MD, Sam’s Hope for a Cure, CRF Board Member
Kristen Murray, Seth’s Circle of Hope, CRF Board Member
Brian Sturgis, 24 Hours for Hank, CRF Board Member
Questions? Email: info@cystinosisresearch.org
