Board of Trustees
The CRF Board of Trustees is comprised of business and scientific leaders and cystinosis family advocates who provide the foundation’s governance and guidance.
CHAIR
Nancy J. Stack, Founding Trustee and President
Cystinosis Research Foundation
VICE CHAIR
Geoffrey L. Stack, Founding Partner
SRG Partners
TREASURER
Donald L. Solsby, President
Compass Direct
BOARD MEMBERS
Marcu Alexander, Founder
Hearts for Hadley
Stéphanie Cherqui, PhD, Professor
University of California, San Diego
Bruce Crair, Retired Executive
Boingo Wireless
Clay Emerson, PhD, PD, CFM, Sr. Technical Director
Princeton Hydro, LLC
Hope for Brooke
Jill Emerson, CPA
Hope for Brooke
Denice Flerchinger, Founder
Tina’s Hope For A Cure
Stephen L. Jenkins, MD
University of Utah Hospital
Sam & Lars Hope for a Cure
Angela Kirchhof
Hope for Hayden
Barbara Kulyk
Chief Administrative Officer for the Village of Consort
David W. Mossman
Aztec Mustang
Kristen Murray
Seth’s Circle of Hope
Kevin Partington, Executive Director
Cushman & Wakefield
Jenna & Patrick’s Foundation of Hope
Teresa Partington, Founder
Jenna & Patrick’s Foundation of Hope
Brian Sturgis, Sr. Director, Business Operations
SimulStat Incorporated
24 Hours for Hank
Scientific Review Board
The CRF Scientific Review Board (SRB) is comprised of leading cystinosis scientists, researchers, and clinicians from around the world. The CRF Scientific Review Board guides the bi-annual call for new research proposals. The SRB members analyze and evaluate every research application submitted to CRF and are actively involved in the grant review process. The SRB advises the Cystinosis Research Foundation on the merit and worthiness of each application and then recommends the proposals for funding consideration. The SRB has been the guiding light for CRF’s strategy focused on funding top researchers at leading institutions around the world.
The Cystinosis Research Foundation is indebted to our Scientific Review Board members for their leadership, guidance, and commitment to improving the lives of those with cystinosis. We are changing the future of cystinosis through our focus on research, and we are giving the children and adults with cystinosis hope for a brighter future. Please join us in welcoming Dr. Freedman and Dr. Devuyst to the 2024 Scientific Review Board!
Board Members
CHAIR
Stéphanie Cherqui, PhD
Professor
Department of Pediatrics
Division of Genetics
University of California, San Diego
San Diego, California
Sergio D. Catz, PhD
Professor
Department of Molecular and Cellular Biology
Department of Molecular Medicine
Scripps Research
La Jolla, California
Olivier Devuyst, MD, PhD
Professor
Institute of Physiology
Head of Mechanisms of Inherited Kidney Disorders Group
University of Zurich, Switzerland
Francesco Emma, MD
Head of Pediatric Nephrology, Director of Nephrology Laboratory
Bambino Gesù Children’s Hospital
Rome, ITALY
Benjamin Freedman, PhD
Assistant Professor
Department of Medicine, Division of Nephrology
University of Washington
Seattle, Washington
Laurence Greenbaum, MD, PhD
Division Director of Pediatric Nephrology
Bernard Marcus Professor of Pediatric Nephrology
Emory University School of Medicine and Children’s Healthcare
Atlanta, Georgia
Paul C. Grimm, MD
Professor of Pediatrics, Pediatric Nephrology
Stanford University School of Medicine
Palo Alto, California
Julie R. Ingelfinger, MD
Deputy Editor of the New England Journal of Medicine
Professor of Pediatrics
Harvard Medical School
Boston, Massachusetts
Stephen L. Jenkins, MD
Assistant Professor, Hospitalist
Department of Internal Medicine
University of Utah Hospital
Salt Lake City, Utah
Aude Servais, MD, PhD
Senior Nephrologist, Department of Adult Nephrology
Necker Hospital, Paris Descartes University
Paris, France
CRF Medical and Scientific Advisory Board
Bruce A. Barshop, MD, PhD
University of California, San Diego
La Jolla, CA
Stéphanie Cherqui, PhD
University of California, San Diego
La Jolla, CA
Ranjan Dohil, MD
University of California, San Diego
La Jolla, CA
Laurence Greenbaum, MD, PhD
Emory University School of Medicine and Children’s Healthcare
Atlanta, GA
Paul C. Grimm, MD
Professor of Pediatrics
Stanford University School of Medicine
Palo Alto, CA
Stephen L. Jenkins, MD
University of Utah Hospital
Salt Lake City, Utah
Robert Mak, MD, PhD
University of California, San Diego
La Jolla, CA
Julian Midgley, BM, BCh
Alberta Children’s Hospital
Calgary, AB, Canada
Doris Trauner, MD
University of California, San Diego
La Jolla, CA
