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2023: Comfortably Chronic
2023: Planning for Kidney Transplant and Living Your Best Life Possible After Kidney Transplant
2023: The Search for Additional Treatments in Nephropathic Cystinosis
2023: Cystinosis Adult Panel
2023: A Cohort of 23 Individuals with Cystinosis: Up to 30 Years of Follow-up
2023: Cystinosis Medication Management Throughout the Life Course
2023: Lessons from the European Patient Population Dr. Emma
2023: Executive Function in Cystinosis
2023: Cystinosis The Building Blocks Dr Jenkins
Strategies to Develop New Therapies in Cystinosis
Update on Transplantation, What's New and What's Hot!
Development of Controlled Release Cysteamine Eye Drops
Myopathy and Dysphagia in Adults with Cystinosis
Stem Cell and Gene Therapy Treatment
Life Post Stem Cell Transplant
A Welcome Message from Nancy, Jeff and Natalie Stack
Stem Cell Trial: Jordan Janz Patient 1 Update
Stem Cell Trial: A Parent’s Perspective Barb and Jeff Kulyk discuss Jordan’s Journey
Stem Cell Trial: Jacob Seachord Patient 3 and his mother, Rocky, discuss their experience
Stem Cell Trial Update From CRF-funded researcher Stéphanie Cherqui, PhD
Research Update: Neuromuscular Disease CRF-funded researcher Reza Seyedsadjadi, MD
Research Update: Neuromuscular Disease CRF-funded researcher Reza Seyedsadjadi, MD
Research Update: Corneal Cystinosis CRF-funded researcher Morgan Fedorchak, PhD
2020 Natalie's Wish Video - Extended
Shine Bright Update: Stéphanie Cherqui 2020
2020 Family Fundraising Check Presentations
2019 Cystinosis Research Foundation
2019 Tribute Video – Dr. Stéphanie Cherqui
2018 Because We Dared To Dream
2017 One Wish. One World. One Hope.
Update on Stem Cell and Gene Therapy
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(949) 223-7610
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(949) 223-7610
info@cystinosisresearch.org
