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Together We Are Making A Difference

CRFs 20th Anniversary

2023: Comfortably Chronic

2023: Planning for Kidney Transplant and Living Your Best Life Possible After Kidney Transplant

2023: The Search for Additional Treatments in Nephropathic Cystinosis

2023: Cystinosis Adult Panel

2023: A Cohort of 23 Individuals with Cystinosis: Up to 30 Years of Follow-up

2023: Cystinosis Medication Management Throughout the Life Course

2023: Lessons from the European Patient Population Dr. Emma

2023: Executive Function in Cystinosis

2023: Cystinosis The Building Blocks Dr Jenkins
09 Thank You v2

Strategies to Develop New Therapies in Cystinosis

Update on Transplantation, What's New and What's Hot!

Development of Controlled Release Cysteamine Eye Drops

Myopathy and Dysphagia in Adults with Cystinosis

Stem Cell and Gene Therapy Treatment

Life Post Stem Cell Transplant

A Welcome Message from Nancy, Jeff and Natalie Stack

Stem Cell Trial: Jordan Janz Patient 1 Update

Stem Cell Trial: A Parent’s Perspective Barb and Jeff Kulyk discuss Jordan’s Journey

Stem Cell Trial: Jacob Seachord Patient 3 and his mother, Rocky, discuss their experience

Stem Cell Trial Update From CRF-funded researcher Stéphanie Cherqui, PhD

Research Update: Neuromuscular Disease CRF-funded researcher Reza Seyedsadjadi, MD

Research Update: Neuromuscular Disease CRF-funded researcher Reza Seyedsadjadi, MD

Research Update: Corneal Cystinosis CRF-funded researcher Morgan Fedorchak, PhD

2020 Natalie's Wish Video - Extended

Shine Bright Update: Stéphanie Cherqui 2020

2020 Family Fundraising Check Presentations

2019 Cystinosis Research Foundation

2019 Tribute Video – Dr. Stéphanie Cherqui​

2018 Because We Dared To Dream​

2017 One Wish. One World. One Hope.

Update on Stem Cell and Gene Therapy

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