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The Cystinosis Research Foundation’s efforts have changed the course of cystinosis research and given new energy to its investigators and scientists. CRF’s commitment to research has given real hope and promise to the global community of cystinosis patients and their families.

CRF has issued 190 multi-year research grants in 12 counties and those researchers have published 82 articles in prestigious journals. CRF “seed” money has been leveraged by seven NIH and other grants totaling over $24 million for CRF funded researchers. As a result of your support, we have funded researchers whose work has exponentially increased the breadth and knowledge about cystinosis and as a result of that knowledge; we are closer to the cure. The operating costs of the CRF are privately underwritten with 100% of your donations going to support cystinosis research. CRF is the largest fund provider of cystinosis research in the world.

Thank you for helping the Cystinosis Research Foundation achieve its primary goal of finding better treatments and a cure for cystinosis. To make a donation, please complete the online donation form below or click here for the printable PDF file, fill out the form and send your check or credit card information to:

The Cystinosis Research Foundation
c/o Zoe Solsby
19200 Von Karman Avenue, Suite 920
Irvine, CA 92612

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Legacy Planned Giving

There are many ways to leave a legacy to support the work and mission of the Cystinosis Research Foundation. They include:

  • Gifts from your Donor-Advised Funds
  • Gifts from Your Will or Trust
  • Charitable Gift Annuity
  • Gifts of Life Insurance
  • Gifts from a Retirement Plan
  • Gifts of Real Estate
  • Gifts in Memory of a Loved One

If you are interested in making a legacy or plan, please contact us at (949) 223-7610

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