Natalie's Wish Virtual Celebration - Friday, April 30, 2021

We have missed all of you, and although we hoped we would be able to meet in-person in 2021, we could not safely do so. This year, our annual Natalie’s Wish fundraiser will launch on April 30th and will be an interactive video program that will feature an update on CRF, project updates from key CRF researchers, a heartwarming story from a newly diagnosed family, and an update from two of the volunteers in the stem cell and gene therapy clinical trial. There will be a special message from our family and patient community who want to express their gratitude to all those who support our research program and our families.

Although the event will launch on April 30, the program will be available to view and explore any time that is convenient for you. While we have faced challenges because of the pandemic, our research teams have continued to work every day to find better treatments and a cure for our adults and children with cystinosis. Thank you for your past commitment to our research program, and thank you for helping us raise funds this year so that we can continue to fund ground-breaking research that will undoubtedly lead to a cure for cystinosis.  Stay tuned for more details and watch for your invitation in the mail!

We are grateful for your continued support to fund cystinosis research to find better treatments and a cure for cystinosis.  Together we will make Natalie’s wish become a reality! 

For questions contact Zoe Solsby, zsolsby@cysinosisresearch.org or call (949) 223-7610. 

 

Subscribe to our monthly newsletter.