Natalie's Wish Celebration

2020 was a year of challenges, uncertainty, and change. Throughout the long year, we had to adjust to new ways of doing things, but we continued to move forward with our research agenda, funding new studies and supporting clinical trials. We are on the brink of scientific advances that hold the potential to be truly life-changing. Together, we have discovered new and more effective treatments, and we are closer to the cure than ever before.

Unfortunately, we have decided to postpone all in-person events this year due to COVID-19. It will be hard not to be together, but we know that even when we are apart, we are making progress, changing lives and giving hope to so many. 

As we begin the new year, we are filled with the promise that this year will be a year of peace, good health and new beginnings. We are closer than ever to the cure and with you by our side, we will undoubtedly reach our goal. Thank you for your unwavering support and dedication to the children and adults with cystinosis.


Saturday, April 18, 2020 – Cancelled
Fashion Island Hotel, Newport Beach, California

It is with heavy hearts that we have decided to cancel the Natalie’s Wish event this year. We are concerned about the spread of coronavirus and want to minimize group interactions as recommended by the CDC.  We consulted with medical experts and CRF board members and felt this was the best and most responsible decision to make. 

We want to keep everyone safe.  We will miss you this year but we hope you will join us on April 17, 2021, as we reunite and celebrate our community. 

We are grateful for your continued generosity and support to fund cystinosis research to find better treatments and a cure for cystinosis.  Together we will make Natalie’s wish become a reality! 

For questions contact Zoe Solsby, or call (949) 223-7610.

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