Brooke Emerson's Story

“Brooke is a vibrant little girl full of life, laughter and curiosity.”

Brooke is a vibrant little girl full of life, laughter and curiosity; she loves school, dance class, her family and her two cats. People fall in love at first sight with her and she will talk your ear off if given the chance.

Although Brooke looks like a normal girl her age, she fights a daily war with cystinosis. She has to take dozens of doses of medicine and a growth hormone shot each day, and has to take hourly eye drops (which is nearly impossible to administer to a five-year-old). She regularly sees a nephrologist, orthopedist, endocrinologist, ophthalmologist, and physical therapist. There isn’t a day that goes by that we don’t think about cystinosis and worry about her future. That is why we focus our energy on fundraising for the Cystinosis Research Foundation (CRF).

Brooke is a fighter and we truly believe that her feisty nature will serve her well in her fight against cystinosis. And while she hasn’t let the disease slow her down, we wish more than anything that cystinosis was a thing of her past. With your continued support and donations in Brooke’s honor to CRF, we are closer than ever to realizing our dream of a cure for Brooke!

With Love and Gratitude,
Clay, Jill and Brooke

Read More

Subscribe to our monthly newsletter.