Hadley entered the world as a healthy, joyful baby, weighing 8 pounds 3 ounces. Her early months were filled with milestones and smiles, but at six months, her health took a mysterious turn. She began losing weight, stopped growing, and her motor development stalled. What followed was a long, uncertain year of tests and questions.

At 18 months, Hadley was diagnosed with cystinosis—a rare genetic disorder that affects the body’s ability to process cystine. With a diagnosis finally in hand, she began treatment, and a new chapter of her life began.

Today, Hadley is a thriving teenager with an unstoppable zest for life. Despite the daily challenges of managing her condition—including a rigorous medication schedule and wearing a brace for scoliosis—she radiates positivity. Her resilience is nothing short of remarkable.

Hadley’s story is a powerful reminder that strength isn’t about avoiding hardship—it’s about rising above it. She continues to chase her passions, embrace joy, and inspire everyone around her with her courage and determination.