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Stem Cell And Gene Therapy Webinar Update Video Now Available!
September 15, 2021
Dr. Cherqui Update from UCSD Stem Cell and Gene Therapy Clinical Trial!
February 16, 2021
The Third Patient Was Transplanted November 16, 2020!
November 17, 2020

CRF Research Insights – Your Donations Are Working for a Cure

June 10, 2021

Did you know that your donations are at work all year long?  CRF awards new grants twice a year to ensure that your donations are

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Research Progress Report by Jennifer Hollywood, PhD, and Alan Davidson, PhD, University of Auckland, New Zealand

March 10, 2021

The goal of this study is to conduct therapeutic drug intervention studies in Ctns knock-out rats to determine whether a combination treatment of cysteamine and

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Research Progress Report by Michael Sekar, PhD, AMMA Therapeutics, Inc.

February 23, 2021

In the spring of 2020, CRF awarded a grant to AMMA Therapeutics for $304,064, the aim of their study is to develop a once-daily subcutaneous

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JOIN OUR JOURNEY TO A CURE ON RARE DISEASE DAY!

February 17, 2021

There are approximately 7,000 rare diseases that affect 30 million people in the U.S. and 300 million people in the world, and only 5% have

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Final Research Progress Report Ming Li, PhD and Jacob Kitzman, PhD, University of Michigan

February 3, 2021

The research study, “Dissect the Protein Turnover Mechanism of Cystinosis Mutants” received a CRF research grant of $285,648 in 2018.  Dr. Li explained in lay

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Final Research Progress Report Sihoun Hahn, MD, PhD, Seattle Children’s Hospital Research Institute

February 2, 2021

CRF has supported Dr. Hahn’s important research since 2017, awarding $234,458 for his research on Newborn Screening.  The aim of the study was to develop

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Who We Are

  • What is Cystinosis?
  • About CRF
  • Leadership
  • Financials
  • Videos
  • Cystinosis Magazine
  • CRF News
  • Contact

For Families

  • Family Stories
  • Canadian Families
  • Current Clinical Trials
  • Cure Cystinosis International Registry (CCIR)
  • Tools for Fundraising
  • Resources

For Researchers

  • Research Overview
  • Apply for Research Grant
  • Grants Awarded
  • Published Studies
  • International Cystinosis Research Symposium

Events

  • Natalie's Wish
  • Day of Hope

Together We Shine Bright

Donate
  • (949) 223-7610
  • info@cystinosisresearch.org
  • (949) 223-7610
  • info@cystinosisresearch.org