Research Progress Report Update by Pierre J. Courtoy, MD, PhD
Evaluation of Ctns-/-Mice Protection by Oral Supplementation with Basic Amino-Acids: Focus on Kidneys – Extension to Another Colony Since 2016, CRF has supported Pierre Courtoy
Research Progress Update by Benjamin (Beno) Freedman, PhD,
Developing A Therapeutic Strategy For Cystinotic Nephropathy With iPS Cells CRF has supported Dr. Freedman since 2018, awarding $392,316 for his important study at the
CRF Awards $2,629,490 For 2020 Spring Research Grants
2020 Spring Grants Announced This past Spring, CRF funded 10 new grants, 4 research grant extensions, and 1 lab equipment grant, totaling more than $2,629,490
COVID-19 And Cystinosis Thoughts About Returning To School and Work By Paul Grimm, MD
Thoughts on Returning to School and Work Paul Grimm, MD Regarding return to school in the fall for patients with cystinosis or post kidney transplant
Could This Be The Cure?
The early results are in and the news is promising! Jordan Janz was transplanted on October 7, 2019. Since that time, he has not had any cysteamine
The First Stem Cell Transplanted Cystinosis Patient Returns Home!
We are excited to report that Jordan Janz, the first cystinosis patient to receive the autologous stem cell and gene therapy treatment as part of
