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Natalie Stack 5th Patient Stem Cell and Gene Therapy Trial – March 29, 2022
August 3, 2022
Tyler Joynt – 4th Patient in the Stem Cell and Gene Therapy Trial on November 15, 2021
August 3, 2022
Stem Cell Trial Phase I/II Updates by Stéphanie Cherqui, PhD
August 3, 2022

CRF Research Helps Other Diseases and Disorders

December 6, 2022

Stéphanie Cherqui, PhD, Awarded $4.8 million CIRM Grant for Friedreich’s Ataxia   We have always known that studying a complicated disease like cystinosis would lead

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Research Progress Report by Bruno Gasnier, PhD, Paris University/CNRS)

August 3, 2022

CRF has provided over $1 million in research funding to Dr. Gasnier since 2007. In the fall of 2021, Dr. Gasnier was awarded a new

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Research Progress Report by Stéphanie Cherqui, PhD, University of California, San Diego and Corinne Antignac, MD, PhD, Imagine Institute, Paris, France

August 3, 2022

CRF awarded a research grant in 2017 to Stéphanie Cherqui, PhD, Professor, Department of Pediatrics, at the University of California, San Diego, and Corinne Antignac,

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Research Progress Update by Morgan DiLeo, PhD, University of Pittsburgh

July 25, 2022

Morgan DiLeo, PhD, Assistant Professor, and Ken Nischal, MD, FRCO, Professor, Chair of Pediatric Ophthalmology at the University of Pittsburgh, received their most recent grant

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The Third Patient Was Transplanted November 16, 2020!

November 15, 2021

From Rocky Seachord, Jacob’s Mom: “He is in very good spirits and I think it is a good omen that he is in the very

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Research Grant Progress Report by Justine Bacchetta, MD, PhD, Hospices Civils de Lyon, France

November 10, 2021

CRF awarded Justine Bacchetta, MD, PhD, and Irma Machuca-Gayet, PhD, their first cystinosis research grant in 2018, for the study of cysteamine toxicity on the

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Who We Are

  • What is Cystinosis?
  • About CRF
  • Leadership
  • Financials
  • Videos
  • Cystinosis Magazine
  • CRF News
  • Contact

For Families

  • Family Stories
  • Canadian Families
  • Current Clinical Trials
  • Cure Cystinosis International Registry (CCIR)
  • Tools for Fundraising
  • Resources

For Researchers

  • Research Overview
  • Apply for Research Grant
  • Grants Awarded
  • Published Studies
  • International Cystinosis Research Symposium

Events

  • Natalie's Wish
  • Day of Hope

Together We Shine Bright

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  • (949) 223-7610
  • info@cystinosisresearch.org
  • (949) 223-7610
  • info@cystinosisresearch.org