The Stem Cell and Gene Therapy Trial has Started!
We are thrilled to announce that following the FDA approval late last year, Dr. Cherqui’s clinical trial has officially begun at UCSD. CRF has funded Dr.
Rare Champions of Hope Celebration
The Cystinosis Research Foundation was recognized by Global Genes as a Rare Champion of Hope Awardee for Research and Treatment. Together, we celebrate with all
Cystinosis Research Foundation Awards $1,761,223 In New Research Grants
We are excited to announce that the CRF Scientific Review Board reviewed the cystinosis grant requests and recommended seven applications for funding, which total $1,761,223.
Cystinosis Research Foundation Awards $2.4 Million in Research Grants
FOR IMMEDIATE RELEASE Spring Awards Fund 10 Scientific Studies in Five Countries, Bringing the Foundation’s Total Research Funding to $29.3 Million Since 2003 IRVINE, Calif.
The High Cost of Hope: When the Parallel Interests of Pharma and Families Collide
Kaiser Health News By Emily Kopp and Jay Hancock Photo Illustration by The Daily Beast Desperate for help finding a lifesaving drug for a genetic
