
Research Progress Update by Benjamin (Beno) Freedman, PhD,
Developing A Therapeutic Strategy For Cystinotic Nephropathy With iPS Cells CRF has supported Dr. Freedman since 2018, awarding $392,316 for his important study at the

CRF Awards $2,629,490 For 2020 Spring Research Grants
2020 Spring Grants Announced This past Spring, CRF funded 10 new grants, 4 research grant extensions, and 1 lab equipment grant, totaling more than $2,629,490

COVID-19 And Cystinosis Thoughts About Returning To School and Work By Paul Grimm, MD
Thoughts on Returning to School and Work Paul Grimm, MD Regarding return to school in the fall for patients with cystinosis or post kidney transplant

Could This Be The Cure?
The early results are in and the news is promising! Jordan Janz was transplanted on October 7, 2019. Since that time, he has not had any cysteamine

The First Stem Cell Transplanted Cystinosis Patient Returns Home!
We are excited to report that Jordan Janz, the first cystinosis patient to receive the autologous stem cell and gene therapy treatment as part of

CRF Awards $2,617,711 in New Grants in 2019
We are pleased to announce that CRF recently approved three new research grants totaling $856,488. The grants were awarded to Dr. Pierre Courtoy at de Duve