Stem Cell Trial Update: One Year Later-Jordan Janz Shares His Thoughts

I definitely feel better today than when I had cystinosis. In the mornings I can go a couple of hours or so without eating and still feel fine, whereas before the transplant if I didn’t eat something as soon as I got up, I would feel very sick. I definitely don’t feel as sick all […]

Research Progress Report by Liang Feng, PhD, Mentor and Xue Guo, PhD, Fellow

CRF has supported Dr. Feng at Stanford University since 2015, awarding him $525,000 for his important research on the Molecular Mechanisms of Cystinosis. The goal of the study is to decipher the membrane transporters found on lysosomes that play critical roles in the pathogenesis and therapy of cystinosis.  Download Dr. Feng’s final progress report for […]