January 2023

Olivier Devuyst, MD, PhD, and Zhiyong Chen, PhD, University of Zurich, Switzerland That fish in your aquarium is becoming a fighter in the battle against cystinosis!  Drs. Chen and Devuyst have used zebrafish, also called “zebra danio” at your local pet store, to create a new cystinosis animal model.  These fish will be used for

Morgan DiLeo, PhD, and Xin Fan, PhD, University of Pittsburgh, Pennsylvania CRF continues to partner with Dr. DiLeo, whose exciting work is paving the way to a better treatment for ocular cystinosis. The study by Dr. Morgan DiLeo is focused on a sustained-release drug delivery mechanism. This mechanism has the goal of replacing the hourly

Jennifer Hollywood, PhD, University of Auckland, New Zealand Could this new drug be better than cysteamine?  Since 2020, CRF has awarded $430,422 to Dr. Jennifer Hollywood and her team in New Zealand for a study to test a new version of cysteamine, CF10, along with the drug everolimus, as a superior treatment to cysteamine alone.