All Out For Ayla and Otto Maher Celebration – A Tremendous Success! 

When the Maher family attended their first Day of Hope Family Conference this year, they received encouragement from other cystinosis families to host a simple fundraiser, the results were extraordinary!  On Sunday, October 13, more than 100 friends and family gathered with the Maher family for their first fundraiser to go “All out for Ayla and Otto” at the Roundhead Brewery in Boston, MA. Guests shared a variety of delicious pizzas and refreshments as the children (and adults) participated in some face painting and games. Ayla and Otto proudly handed out CRF brochures with their picture on the cover and were happy seeing their friends and even a few teachers in A+O event t-shirts. 

During the festivities, Amelia and Tim were surrounded by the love and support of their community. As donations continued to arrive, they were astounded to learn that as first-time fundraisers more than $74,480 was raised for research!  We are grateful to the Maher family for their time and efforts in organizing their first event, and for the support of your generous community in honor of Ayla and Otto, and cystinosis research. Together, we are changing lives. Thank you!

Amelia, Tim, Ayla, and Otto