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Donate to CRF today and your donation will have twice the impact to help cure cystinosis! The mission of the Cystinosis Research Foundation is to support basic, clinical, and translational research for better treatments and a cure. Today, because of your generosity and support, CRF is the largest private fund provider of grants for cystinosis …

Tuesday November 29, 2022 Read More »

The Cystinosis Research Foundation is proud to partner with Jenna & Patrick’s Foundation of Hope on this Giving Tuesday! Today because of your generosity and support, CRF is the largest private fund provider of grants for cystinosis research in the world, and we are pleased to let you know that 100% of your donations directly …

JOIN US ON GIVING TUESDAY DECEMBER 1, 2020 – CRF AND JPFH ON THE PATH TO A CURE! Read More »

Today because of your generosity and support, CRF is the largest private fund provider of grants for cystinosis research in the world, and we are pleased to let you know that 100% of your donations directly support cystinosis research. Without our amazing and committed community of CRF friends, families, and researchers, we would not be …

JOIN US ON GIVING TUESDAY, November 29, 2022 Read More »

SAVE THE DATE – Saturday, April 18, 2020 Fashion Island Hotel, Newport Beach, California The Natalie’s Wish event is the most inspirational night of the year! Join us as we honor the children and adults with cystinosis who so courageously battle this disease.  We will celebrate CRF’s milestones including an update on the stem cell …

2020 Natalie’s Wish Celebration Read More »

Five years ago, if you were to ask what brings me passion, I would have said “travel and adventure”. But now that I’ve reached the wise, old age of thirty, my answer is quite different. Although those things are still important, what I now find most thrilling is making a difference in lives. It’s about …

Shannon Keizer Read More »

Aarav’s Time To Shine – A Night To Remember! On Saturday, December 28th over 160 people gathered at The Sutter Club in Sacramento, CA to attend the inaugural “Grand Gala” fundraiser and silent auction for Aarav’s Time to Shine. In honor of Aarav Khalasi, Aarav’s Time to Shine partnered with the Cystinosis Research Foundation (CRF) …

First Inaugural Grand Gala for Aarav Raises Over $96,000 Read More »

SAVE THE DATE The countdown continues! We will celebrate our cystinosis community at the Day of Hope family conference and we will renew our efforts to work together to support research that will improve the lives of our adults and children with cystinosis. CRF researchers and clinicians will present their research findings and progress. Topics …

Day of Hope Family Conference – April 16 – April 18, 2020 Read More »