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Tuesday November 29, 2022

Donate to CRF today and your donation will have twice the impact to help cure cystinosis! The mission of the Cystinosis Research Foundation is to support basic, clinical, and translational research for better treatments and a cure. Today, because of your generosity and support, CRF is the largest private fund provider of grants for cystinosis …

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JOIN US ON GIVING TUESDAY DECEMBER 1, 2020 – CRF AND JPFH ON THE PATH TO A CURE!

The Cystinosis Research Foundation is proud to partner with Jenna & Patrick’s Foundation of Hope on this Giving Tuesday! Today because of your generosity and support, CRF is the largest private fund provider of grants for cystinosis research in the world, and we are pleased to let you know that 100% of your donations directly …

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Pins for a Purpose – In Honor of Isaac Andrews

Pins for a Purpose – Bowling TournamentWhen: Saturday, October 2, 2021Where: Drkula’s Bowl ( 6710 Cahill Ave, Inver Grove Heights, MN 55016)Time: 11:30am (Check-in for Moonlight bowling and silent auction), 3:00pm (Dinner) Isaac Andrews is an animated 4-year-old boy whose smile and laughter can light up a room.  Talking to him you would never know …

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Shannon Keizer

Five years ago, if you were to ask what brings me passion, I would have said “travel and adventure”. But now that I’ve reached the wise, old age of thirty, my answer is quite different. Although those things are still important, what I now find most thrilling is making a difference in lives. It’s about …

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First Inaugural Grand Gala for Aarav Raises Over $96,000

Aarav’s Time To Shine – A Night To Remember! On Saturday, December 28th over 160 people gathered at The Sutter Club in Sacramento, CA to attend the inaugural “Grand Gala” fundraiser and silent auction for Aarav’s Time to Shine. In honor of Aarav Khalasi, Aarav’s Time to Shine partnered with the Cystinosis Research Foundation (CRF) …

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Day of Hope Family Conference – April 16 – April 18, 2020

SAVE THE DATE The countdown continues! We will celebrate our cystinosis community at the Day of Hope family conference and we will renew our efforts to work together to support research that will improve the lives of our adults and children with cystinosis. CRF researchers and clinicians will present their research findings and progress. Topics …

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Aidan’s Army Golfs Fore a Cure Raises $73,000 for Research

Dear Friends: Another win for Aidan’s Army!  Over 100 friends and family members from across the country joined the fight to cure cystinosis on July 29, 2019, at Forest Lake Country Club in Bloomfield Hills, Michigan. Aidan’s Army is strong and raised over $73,000 for cystinosis research. We are forever thankful to our amazing donors …

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