$206,705 Raised for Cystinosis Research Your generosity on Giving Tuesday was astounding. Together we raised more than $206,705 for cystinosis research! As a result of your commitment to CRF’s research program, CRF has funded 212 research studies in 12 countries ensuring that there is a CRF researcher working on cystinosis every minute of the day. CRF’s highly …
There are approximately 7,000 rare diseases that affect 30 million people in the U.S. and 300 million people in the world, and only 5% have an FDA-approved treatment. Cystinosis affects approximately 2,000 people in the world, and we are fortunate to have a treatment. In fact, as a direct result of CRF’s funding and strategy …
The Cystinosis Research Foundation is proud to partner with Jenna & Patrick’s Foundation of Hope on this Giving Tuesday! Today because of your generosity and support, CRF is the largest private fund provider of grants for cystinosis research in the world, and we are pleased to let you know that 100% of your donations directly …
JOIN US ON GIVING TUESDAY DECEMBER 1, 2020 – CRF AND JPFH ON THE PATH TO A CURE! Read More »
Today because of your generosity and support, CRF is the largest private fund provider of grants for cystinosis research in the world, and we are pleased to let you know that 100% of your donations directly support cystinosis research. Without our amazing and committed community of CRF friends, families, and researchers, we would not be …
Pins for a Purpose – Bowling TournamentWhen: Saturday, October 2, 2021Where: Drkula’s Bowl ( 6710 Cahill Ave, Inver Grove Heights, MN 55016)Time: 11:30am (Check-in for Moonlight bowling and silent auction), 3:00pm (Dinner) Isaac Andrews is an animated 4-year-old boy whose smile and laughter can light up a room. Talking to him you would never know …
SAVE THE DATE – Saturday, April 18, 2020 Fashion Island Hotel, Newport Beach, California The Natalie’s Wish event is the most inspirational night of the year! Join us as we honor the children and adults with cystinosis who so courageously battle this disease. We will celebrate CRF’s milestones including an update on the stem cell …
Five years ago, if you were to ask what brings me passion, I would have said “travel and adventure”. But now that I’ve reached the wise, old age of thirty, my answer is quite different. Although those things are still important, what I now find most thrilling is making a difference in lives. It’s about …
Aarav’s Time To Shine – A Night To Remember! On Saturday, December 28th over 160 people gathered at The Sutter Club in Sacramento, CA to attend the inaugural “Grand Gala” fundraiser and silent auction for Aarav’s Time to Shine. In honor of Aarav Khalasi, Aarav’s Time to Shine partnered with the Cystinosis Research Foundation (CRF) …
First Inaugural Grand Gala for Aarav Raises Over $96,000 Read More »
SAVE THE DATE The countdown continues! We will celebrate our cystinosis community at the Day of Hope family conference and we will renew our efforts to work together to support research that will improve the lives of our adults and children with cystinosis. CRF researchers and clinicians will present their research findings and progress. Topics …
Day of Hope Family Conference – April 16 – April 18, 2020 Read More »
Dear Friends: Another win for Aidan’s Army! Over 100 friends and family members from across the country joined the fight to cure cystinosis on July 29, 2019, at Forest Lake Country Club in Bloomfield Hills, Michigan. Aidan’s Army is strong and raised over $73,000 for cystinosis research. We are forever thankful to our amazing donors …
Aidan’s Army Golfs Fore a Cure Raises $73,000 for Research Read More »
Privacy Policy | Accessibility Statement
Designed by Idea Hall
