CRF is excited to announce the addition of two outstanding scientists to the CRF Scientific Review Board (SRB). These new members are experts in the field of cystinosis and have a deep commitment to the cystinosis community. With the expertise and dedication of our Scientific Review Board, we are changing the future of cystinosis. Please join us in welcoming our newest members to the 2024 Scientific Review Board!
Benjamin “Beno” Freedman, PhD, Associate Professor, University of Washington, Department of Medicine, Division of Nephrology, and Olivier Devuyst, MD, PhD, Professor, University of Zurich, Switzerland, Institute of Physiology, Group Leader of Mechanisms of Inherited Kidney Disorders.
Our successful global research program is a direct result of the expertise and guidance of the SRB. Last year, Stéphanie Cherqui, PhD, a Professor at the University of California, San Diego, accepted the position of Chair of the SRB and continues to advance the CRF research program. With the leadership of the entire Scientific Review Board, CRF will continue to fund the most promising research studies in the world aimed at finding better treatments and a cure for cystinosis.
Given where we are today with our impressive global research program, it is hard to believe we had such humble beginnings. Over the last 20 years, our research program has grown because of the generous donations from our families and large community of friends who have partnered with us to find a cure for cystinosis. Since 2003, CRF has awarded 245 research grants in 13 countries, resulting in two FDA approvals, numerous clinical trials, and discoveries about cystinosis and its complications.
We thank every member of the SRB board for their dedication to our community and their commitment to research. We are changing the future of cystinosis through our focus on research and giving the children and adults with cystinosis hope for a brighter future.
