Collins Galloway was diagnosed with Cystinosis at 18 months old. Her daily routine consisted of medicine and nutrition through her g-tube seven times a day. She gets routine blood work to test her levels and adjust her medicine dosage. Despite all she has been through and continues to go through, she remains the most upbeat and happy girl! 

Collins turned six in June 2025! She’s full of energy and determination—she thinks she’s nine like her big sister and wants to do everything she does. This fall has been especially exciting: she started Kindergarten and is absolutely loving it. She also began dance class and continues to enjoy both golf and tennis. Her strength inspires us daily! 

Health-wise, Collins is feeling well and tolerating all her medications. We’re still working closely with her doctors to reach her full therapeutic dose of Procysbi®. While her white blood cell levels remain slightly elevated, the rest of her bloodwork has been satisfactory. 

This summer, we applied for Collins to participate in the Atlanta clinical trial. Unfortunately, her kidney levels were not within the established guidelines, so she was unable to qualify at this time. Even so, we remain hopeful and grateful for all the progress being made in research and treatment.

We are grateful to our friends, family, and community for the overwhelming support in honor of Collins and cystinosis research!

Thank you,
Christina, Hunt, Rowyn, and Collins