While cystinosis is a rare disease, the strength, resilience, and hope in our community are as strong and determined as ever! CRF is proud to work on behalf of children and adults with cystinosis to ensure that research focused on a cure becomes a reality.
CRF is the largest private fund provider of cystinosis research in the world. Through our efforts, every major scientific advancement in cystinosis is a direct result of our strategy to fund the world’s most talented researchers. Through collaboration and innovation, these researchers bring hope to our children and adults with cystinosis.
Join us on Rare Disease Day and be part of our movement to improve the lives of our children and adults with cystinosis, while advancing discoveries that benefit other disease communities. Donate in honor of Rare Disease Day 2026!
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