It all started with one girl’s wish, “to have my disease go away forever.” More than two decades later, Natalie Stack’s wish for a cure has grown from one girl’s dream, to the rallying call of an entire, worldwide community. It is our collective drive to find a cure that has changed lives and given hope to those living with cystinosis. Today, the cure for cystinosis is within reach because of your commitment to our children and adults with cystinosis.

Now, 248 research studies, $72 million+ and two FDA approvals later, Natalie’s wish has become the wish in all our hearts. While we started as a small community of separate families spread across the world, we have now become a united global community, a research powerhouse, and a movement to turn our hope for a cure into reality. We have made progress, but much remains to be discovered. Our relentless pursuit of a cure requires that we continue to fund cystinosis research with the greatest potential.

Join us this April for our month-long Natalie’s Wish fundraiser to celebrate over 22 years of impact, ring in a new era of progress and continue the momentum for all those born with cystinosis, today and in the future. Natalie’s wish for a cure is our wish. It fuels our determination to find better treatments and a cure for cystinosis, and we won’t stop until we do.