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You Are Invited to a CRF Zoom Webinar!

Update on the Stem Cell and Gene Therapy Trial with Dr. Stéphanie Cherqui, Jordan Janz, and Barb Kulyk

Date: Tuesday, October 27, 2020
Time: 9:00 AM Pacific Time / 12:00 PM Eastern Time
Register to attend the webinar:
https://zoom.us/webinar/register/WN_vWa34C9hQte48m4x548umg

After registering, you will receive a confirmation email containing information about joining the webinar.

Join us for a virtual presentation by Dr. Cherqui, who will give an update on the UCSD stem cell clinical trial. Dr. Cherqui will present the most current information from the clinical trial and will discuss the data from the first two patients. We are excited to have Jordan Janz, the first person transplanted, and his mom Barb Kulyk, with us as panelists. Jordan will share his patient experience and Barb will share her experience as his caregiver during the trial. There will be a Q&A session after Dr. Cherqui’s presentation, so please submit your questions for Dr. Cherqui,  Jordan, and Barb ahead of time. Email your questions to nstack@cystinosisresearch.org by October 22. Given the time constraints, we will try our best to have every question answered.

This is a very exciting and hopeful time in our community. CRF has funded Dr. Cherqui’s research since 2007 and now, we will learn more about how her research is becoming a reality. Join us to learn about the status of the trial, the timeline for the next patient volunteers, and more about what the future holds for our community! Register today and submit your question!

Technical questions regarding this event can be directed to: sjohnson@cystinosisresearch.org (please list Fall 2020 Webinar Help in the subject line)

Webinar Speakers

 Stéphanie Cherqui, PhD 

Nancy J. Stack   

Jordan Janz

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