Day of Hope Family Conference – April 16 – April 18, 2020
SAVE THE DATE
The countdown continues! We will celebrate our cystinosis community at the Day of Hope family conference and we will renew our efforts to work together to support research that will improve the lives of our adults and children with cystinosis. CRF researchers and clinicians will present their research findings and progress. Topics include stem cell and gene therapy, muscle wasting, and myopathy, treatments for corneal cystinosis, kidney disease and more. The conference provides opportunities to renew old friendships and meet new cystinosis families from around the world.
CRF has secured a special hotel flat rate of $205/night for cystinosis families and $225/night plus tax and fees for other guests. The special rate of $205 is for four (4) nights only. Reservations must be secured prior to March 23, 2020, in order to receive the discounted pricing.
To book your hotel accommodations, click the direct link Day of Hope or go to FashionIslandHotel.com, click Book Now, and enter dates, then click Add Code, and enter our conference number CYST04152020.
A partial list of speakers include:
Stéphanie Cherqui, PhD, University of California, San Diego
Morgan Fedorchak, PhD, University of Pittsburgh School of Medicine
Benjamin “Beno” Freedman, PhD University of Washington
Paul Grimm, MD, Stanford University School of Medicine
Larry Greenbaum, MD, PhD, FAAP, Emory School of Medicine
Stephen Jenkins, MD, University of Utah, School of Medicine
CRF is going green this year and has utilized online technology to streamline our Day of Hope registration process. The Day of Hope online platform is through the Survey Monkey Apply portal and messages from the system will come under the email address firstname.lastname@example.org
Register to attend the CRF Day of Hope Conference!
Day of Hope Invitation PDF
Family Assistance Fund PDF
In order to be considered for the Assistance Fund, a completed form must be submitted before March 15, 2020. For questions or to submit the form email: email@example.com
We look forward to seeing you at the conference in April 2020!