Day of Hope Family Conference – April 16 – April 18, 2020
SAVE THE DATE
Cystinosis families around the world are united in the quest for a cure and have funded 187 multi-year research studies which have led to new treatments and new discoveries about cystinosis.
We will celebrate our cystinosis community at the Day of Hope family conference, and renew our efforts to work together as we learn, laugh, share and celebrate the cystinosis community for three exciting days at the 2020 CRF Day of Hope Family Conference at The Fashion Island Hotel in Newport Beach, California. CRF has secured a special hotel flat rate of $205/night for cystinosis families and $225/night plus tax and fees for other guests. The special rate of $205 is for four (4) nights only. The Day of Hope registration forms and information will be available soon!
The Day of Hope conference will include sessions led by CRF funded researchers and clinicians who will be presenting their research progress and answer questions from those in attendance. The conference provides opportunities to renew old friendships and meet new cystinosis families from around the world. We look forward to seeing you at the conference in April 2020!
- Updates on current clinical trials including the stem cell and gene therapy trial
- GI issues in cystinosis
- Novel gel sphere for corneal cystinosis
- Kidney disease and cystinosis
- Adults and cystinosis
- Bone deformities and cystinosis
- Novel treatment for cystinosis
A partial list of speakers include:
Stephanie Cherqui, PhD, University of California, San Diego
Morgan Fedorchak, PhD, University of Pittsburgh School of Medicine
Benjamin “Beno” Freedman, PhD University of Washington
Paul Grimm, MD, Stanford University School of Medicine
Larry Greenbaum, MD, PhD, FAAP, Emory School of Medicine
Stephen Jenkins, MD, University of Utah, School of Medicine