Which event are you registering for?* Children's Program Name* First Last Email* Does the email address provided have a zoom account (required for breakout sessions): Yes No Since you don't have a Zoom account, please sign up here prior to the event: https://zoom.us/freesignup/Cell Phone # (optional) Address (optional) Street Address Address Line 2 City State / Province / Region ZIP / Postal Code AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongo, Democratic Republic of theCongo, Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzech RepublicCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatini (Swaziland)EthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussiaRwandaRéunionSaint BarthélemySaint HelenaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth GeorgiaSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks and Caicos IslandsTuvaluUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaVietnamVirgin Islands, BritishVirgin Islands, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands Country What is your connection to cystinosis?* I have cystinosis My child has cystinosis My partner or spouse has cystinosis My grandchild has cystinosis My extended family member has cystinosis My friend or friend's child has cystinosis Physician Researcher Pharmaceutical industry What is your age?* I am an adult 18 years or older I am a teenager I am a 12 years old or younger What is your child’s name? Please list first and last* First Last How old is your child?* Would you like to register another child? Yes No What is your child’s name? Please list first and last First Last How old is your child? What is the name of your partner or spouse? Please list first and last* First Last What is your grandchild’s name? Please list first and last* First Last How old is the child?* Optional - What is the family member’s name? First Last Optional - How old is the family member? Optional - What is the friend's name? First Last Optional - How old is the individual with cystinosis? Where are you located? Please list city, state, country* What is your specialty?* Are you currently seeing cystinosis patients?* Yes No Where are you located? Please list institution name, city, state and country* Have you ever been funded by CRF? If so, list approximate date and institution name* What is the name of your company and where is it located? Please list city, state, country* Family Breakout Sessions - Which would you like to attend?* Parents of Little Ones (0–5 yrs) - Hosted by Joshua “JJ” Zaritsky, MD, PhD Moderated by Jill Emerson Parents of Kids (6–12 yrs) - Hosted by Julian Midgley, BM, BCh (MD) Moderated by Stephen Jenkins, MD Teens (13 and up, not for parents) – Hosted by Paul C. Grimm, MD Moderated by Lauren Hartz Parents of Teens – Hosted and Moderated by Brian Sturgis Email address attending this breakout session: Does the email address provided have a zoom account (required for breakout sessions): Yes No Since you don't have a Zoom account, please sign up here prior to the event: https://zoom.us/freesignup/As a parent would you like to attend the Parents of Teens session or another session? (Requires a separate computer or smart phone to join the Zoom meeting) Yes No Which breakout session would you like to attend? Email address attending this breakout session: Does the email address provided have a zoom account (required for breakout sessions): Yes No Since you don't have a Zoom account, please sign up here prior to the event: https://zoom.us/freesignup/The session you selected is for Parents of Teens. Would your teen like to attend the Teens session also? Yes No Email address attending this breakout session: Does the email address provided have a zoom account (required for breakout sessions): Yes No Since you don't have a Zoom account, please sign up here prior to the event: https://zoom.us/freesignup/Would you like to receive the electronic Cystinosis Research Foundation monthly Star Facts newsletter?* Yes, please add my email to the distribution list I’m already part of the CRF fan club! No thank you, not at this time How did you find out about this webinar?* Email from CRF CRF website post Facebook Post Friend of Family Member
