From Teresa, Winter 2025

Greetings to our Friends & Family, 

As this year comes to a close, our hearts are full of gratitude for the remarkable community that continues to surround our family. Your steady support has carried us through one of the most challenging seasons of our lives. Jenna endured a failed kidney transplant, a difficult year of dialysis, and—thankfully—a successful transplant in August. Patrick is now preparing for his own transplant in early 2026. Their resilience inspires us every single day, and caring for them remains our family’s top priority.

Although we haven’t hosted Swing & Bling for several years, our commitment to funding cystinosis research has never paused. This simple “holiday letter-campaign” is our continued effort to support the work that gives us—and so many others—hope. Because of your generosity, Jenna & Patrick’s Foundation of Hope has contributed more than $3 million to the Cystinosis Research Foundation over the years. We are humbled by the impact you’ve helped create.

CRF-funded research continues to gain extraordinary momentum, which you can read about HERE. The stem cell therapy clinical trial shows real promise, pointing toward a future where cystinosis may be dramatically changed—or even cured. At the same time, important studies are underway to improve medications and treatments for patients right now, long before the stem cell trial reaches later phases. The progress is encouraging, but the work is far from finished.

As we enter this season of giving, we ask you to consider Jenna & Patrick’s Foundation of Hope in your Giving Tuesday plans and holiday charitable giving. Your support directly fuels lifesaving research and brings hope to our family and to every family living with cystinosis. What was once a day of golf, dinner, and dancing has evolved into this heartfelt holiday campaign—and we are deeply grateful for your continued partnership.

From our family to yours, thank you for standing with us. We wish you a Christmas season filled with peace, love, and HOPE.

With heartfelt gratitude,
Teresa, Kevin, Jenna & Patrick
Jenna & Patrick’s Foundation of Hope