Landon was just 14 months old when he was diagnosed with Cystinosis. During his month-long hospitalization, we asked the nephrologist if he would be able to live a “normal” life. What we really meant was: would he be able to attend school, go to amusement parks, have sleepovers with friends, go to dances, join clubs and extracurriculars—all the things many of us take for granted? The doctor responded that he would, though there would be bumps in the road. And so far, that has proven true.

Recently, Landon performed as Pinocchio in his middle school musical—his eighth show in just three years. He is finishing his final year of middle school with excitement: a class trip to Washington, D.C., and a formal dinner dance with his friends. He’s already registered for his freshman year of high school, and he talks about going away to college, applying for a summer job, and getting his driver’s license.

Landon is always ready for adventure—whether it’s trying a new food or restaurant, or kayaking for the first time at Deep Creek last summer. He performs in musicals both at school and in a local youth theater program, constantly working to improve his singing, dancing, and acting. His passion and dedication open up more opportunities with each performance. He’s deeply connected to his family, and he surrounds himself with friends who bring him joy.

His life is full, and we are endlessly inspired by him. Things are not always easy, and he knows that well. But from those challenges, he’s developed a strong work ethic, a sense of humility, and a deep appreciation for all the good in his life.

Cystinosis is part of Landon’s story, but it does not define him. He continues to manage his condition with daily medications, growth hormone shots, and eye drops. He sees five different specialists and has blood work done every 4–6 months. The side effects of his medication can be disruptive at times, but he handles them with remarkable grace. He’s learning the importance of consistency with his medication and is becoming more thoughtful in taking ownership of his health.

We know there will be more bumps along the way, but we trust in him—and in ourselves as a family—to face whatever comes next, together.

Thank you for your love and support,
Lauren, Jimmy, Jordan, and Landon
The Hartz Family