For those of you who attended the Day of Hope this year, we introduced you to Dr. Donny Suh from UC Irvine. He is an expert on ocular cystinosis. He held an eye clinic at the family conference and thanks to you examined 36 patients with cystinosis. We are excited that he will be joining us again at the 2025 Day of Hope.
Needless to say, he now has more information than ever about ocular cystinosis! He will be holding a virtual event on November 5th and will be live to answer any and all questions you might have. Learn more about ocular cystinosis and the work Dr. Suh is doing to improve the lives of those with cystinosis. The event is hosted by Recordati – download the flyer to register and for more information.
