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Join Us and Watch Natalie’s Wish Grow!

Natalie’s wish is our wish — the wish that is changing lives.

It started with just a seedling of an idea: one girl’s wish, “to have my disease go away forever.” But with the proper care, commitment and cultivation, Natalie Stack’s wish for a cure has flourished from a 12 year old’s dream into a global, research-driven effort to create a world without cystinosis. Today, our shared mission to find a cure is within reach because of your unwavering hope and dedication to our children and adults with cystinosis.

23 years, 256 research studies, two FDA approvals, and $73 million+ later, Natalie’s wish has grown to become the wish in all our hearts. Rooted in our humble beginnings as a small community of families spread across the world, the Cystinosis Research Foundation has blossomed into a united international community, a research powerhouse, and a movement to turn our hope for a cure into reality.

We have made progress, but much remains to be discovered. Our relentless pursuit of a cure requires that we continue to fund cystinosis research with the greatest potential. Natalie’s wish for a cure has so much more growing to do. Join us this April for our month-long Natalie’s Wish fundraiser to celebrate over two decades of impact and support life-changing research. Together, we can help hope bloom for all those born with cystinosis, today and in the future.

Let’s continue to nurture Natalie’s Wish this spring and see our hope bloom.

Natalie 2026
Aarav First Day of 3rd Grade
Fehr Family
Otto and Alya
Hughes Family
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Emma Suetta
2023 Brooke
Circle of Hope 2024

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Thank you for your ongoing support of our efforts to find better treatments and a cure!