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Giving Tuesday image Cystinosis Research Foundation

Thank You for Giving!

Your donations mean a brighter future for our children and adults with cystinosis. Together we are turning dreaming into doing!  With the generosity and support of our Facebook friends and our CRF community we raised $26,675 for cystinosis research.  Thanks to your commitment, we are funding cutting edge research that is leading to new treatments and a […]

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The Stem Cell and Gene Therapy Trial has Started!

We are thrilled to announce that following the FDA approval late last year, Dr. Cherqui’s clinical trial has officially begun at UCSD. CRF has funded Dr. Stéphanie Cherqui since 2006 issuing grants totaling over $5.4 million to support her research. The path to FDA approval was long and challenging, but Stéphanie never gave up. She remained focused

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Cystinosis Research Foundation Awards $1,761,223 In New Research Grants

We are excited to announce that the CRF Scientific Review Board reviewed the cystinosis grant requests and recommended seven applications for funding, which total $1,761,223. Included was an award of $765,192 for our brilliant CRF researcher, Stéphanie Cherqui, PhD of UCSD, for the stem cell and gene therapy clinical trial, covering costs above and beyond the

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Cystinosis Research Foundation Awards $2.4 Million in Research Grants

FOR IMMEDIATE RELEASE Spring Awards Fund 10 Scientific Studies in Five Countries, Bringing the Foundation’s Total Research Funding to $29.3 Million Since 2003 IRVINE, Calif. – September 24, 2018 – The Cystinosis Research Foundation, the largest provider of grants for cystinosis research in the world, announced today that it has awarded $2.4 million to date

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The High Cost of Hope: When the Parallel Interests of Pharma and Families Collide

Kaiser Health News By Emily Kopp and Jay Hancock Photo Illustration by The Daily Beast Desperate for help finding a lifesaving drug for a genetic disease, families banded together to fund early research but found themselves at odds with the drug companies. A desperate but determined group of parents raised millions through golf tournaments and

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