Donate for Preston Luke
Dear family and friends,
Those of you that know Preston, know that he is happy, energetic and a typical two year old boy. He loves sports, the great outdoors and playing with his big sister, cousins, and friends. However, despite all of his joys in life, for the last year he has struggled with chronic vomiting, excessive thirst and urination, failure to thrive and other ailments. He has been through many doctors’ appointments, blood draws and numerous other labs. On February 22, 2016 all of our biggest fears became our reality, we finally had a diagnosis, Preston has Cystinosis.
We have been so grateful to have answers so that we are able to do all that we can to help Preston have the best quality of life as possible. We are very happy that Preston’s body has been tolerating medications and he has slowly started to gain weight. He has been my biggest hero through all of this; he doesn’t fight us with any medications, always has a smile on his face and surprisingly has so much energy.
Some of Preston’s challenges are behind us but now a whole new set of struggles begins. Preston has started a strenuous medication regimen which consists of 17 doses of different medications every day. All of these medications will slow the progression of Cystinosis but unfortunately won’t stop or fix all of the problems.
Thanks to the Stack family and the Cystinosis Research Foundation, we have hope for Preston’s future. It is because of them we can see progress for future medications to help Preston and other children like him. Not only have they worked tirelessly on researching advancements for medications but they are so close to finding a cure. Unfortunately, the CRF does not receive a lot of funding help outside of donations. With your help the CRF can continue their endeavors toward developing better treatments, and hopefully a cure. We are happy to say that 100% of every donation goes directly toward research. We appreciate your love and support during this trying time.
Shane & Ciara Luke