Grand Gala for Aarav, December 28, 2019
On December 29th, 2014 we were blessed with the most amazing little boy, Aarav Khalasi. He quickly began growing and hitting his milestones as most babies do. At about 9 months of age, we began noticing his lack of interest in food and difficulty with eating solid foods. At the same time, we noticed he wasn’t gaining weight nor did he have any interest in standing or wanting to walk.
We addressed these concerns with his pediatrician during his one-year checkup appointment. The doctor ordered a series of lab tests and blood was drawn on the same day. The next day we were asked to come back in to have the same lab tests redone. Aarav’s electrolytes were extremely low and we needed to have him admitted into the hospital right away.
On our first night in the hospital, his attending physician told us they suspected he may have cystinosis. Our hearts were broken as we began to learn more and were not ready to accept it. As the days went by, new medications were added, and countless labs were drawn to help level his electrolytes and bicarbonate. After one month of being in the hospital, on February 10th, 2016, the final results came, and our son was officially diagnosed with cystinosis.
Please join us for the inaugural Grand Gala Fundraiser & Silent Auction for Aarav’s Time to Shine. Aarav’s Time to Shine is helping raise awareness and funds to support the Cystinosis Research Foundation in their efforts to search for better treatments and hopefully, one day find a cure for cystinosis. Cystinosis is a rare disease that only affects 2,000 people in the world. This disease slowly destroys organs in the body, including the kidneys, liver, eyes, muscles, and brain.
We hope you will join us at The Sutter Club on Saturday, December 28, 2019, by purchasing individual guest tickets or putting together a table with friends or colleagues for our first Grand Gala Celebration in honor of Aarav. The night will include a cocktail hour, dinner, music, silent auction, dancing, and more!
Sponsorships opportunities are also available and come with event tickets and other benefits as highlighted below. Unable to attend and interested in donating to help find a cure? Select “I would like to make a donation only” below to make your contribution.
The Khalasi Family,
Minaxi, Mukund, Aarav, Isha and Rani
Grand Gala Celebration
Saturday, December 28, 2019
5:30 PM Cocktail hour, followed by dinner and dancing
The Sutter Club
1220 9th St. Sacramento, CA 95814