Zoe Solsby

CRF Awards $2,629,490 For 2020 Spring Research Grants

2020 Spring Grants Announced This past Spring, CRF funded 10 new grants, 4 research grant extensions, and 1 lab equipment grant, totaling more than $2,629,490  for cystinosis research. And since 2003, CRF has funded 200 multi-year grants in 12 countries which has made CRF the largest funder of cystinosis research in the world.  Thank you …

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Research Progress Report Update by Pierre J. Courtoy, MD, PhD

Evaluation of Ctns-/-Mice Protection by Oral Supplementation with Basic Amino-Acids:  Focus on Kidneys – Extension to Another Colony Since 2016, CRF has supported Pierre Courtoy MD, PhD, and Christophe Pierreux, PhD, with $504,728 in grant funding for their important research studies at the de Duve Institute in Brussels, Belgium. Despite the challenges with Covid-19, they …

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Research Progress Update by Benjamin (Beno) Freedman, PhD,

Developing A Therapeutic Strategy For Cystinotic Nephropathy With iPS Cells CRF has supported Dr. Freedman since 2018, awarding $392,316 for his important study at the University of Washington Medicine/Nephrology, using human induced pluripotent stem (iPS) cells and derived kidney organoids to develop therapeutics for cystinotic nephropathy.  His August 2020 report outlines the progress he has …

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COVID-19 And Cystinosis Thoughts About Returning To School and Work By Paul Grimm, MD

Thoughts on Returning to School and Work Paul Grimm, MD Regarding return to school in the fall for patients with cystinosis or post kidney transplant or are on dialysis what is a person to do? This is a question being asked all over the country and the world. I am involved with a number of …

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